Privacy Policy

 
Privacy
 

This privacy policy explains how PLEA, in accordance with GDPR, uses the personal data we collect from you when you use our website.

 

PLEA is registered with the Information Commissioner’s Office

What data do we collect?

PLEA ask for only minimal data to allow sign up to our mailing list:

  • Email address

  • First name

  • Surname

How do we collect your data?

You directly provide PLEA with the data we collect. We collect data and process data when you:

  • Register online

  • Voluntarily complete a survey or provide feedback

  • Use or view our website via your browser’s cookies

How will we use your data?

PLEA collects your data so that we can:

  • Email you with our newsletter and other information we think you might like

How do we store your data?

PLEA uses Mailchimp as our mailing platform to securely store your data.

We will keep your email address for 18 months. Once this time period has expired, we will delete your data if when contacted you do not choose to opt-in.

Marketing

PLEA would like to send you information about news and services of ours that we think you might like.

If you have agreed to receive marketing, you may always opt out at a later date.

You have the right at any time to stop PLEA from contacting you for marketing purposes.

If you no longer wish to be contacted for marketing purposes, please click here.

What are your data protection rights?

PLEA would like to make sure you are fully aware of all of your data protection rights. Every user is entitled to the following:

The right to access – You have the right to make a request to PLEA for copies of your personal data. You may be charged a small fee for this service.

The right to rectification – You have the right to request that PLEA correct any information you believe is inaccurate. You also have the right to request PLEA to complete the information you believe is incomplete.

The right to erasure – You have the right to request that PLEA erase your personal data, under certain conditions.

The right to restrict processing – You have the right to request that PLEA restrict the processing of your personal data, under certain conditions.

The right to object to processing – You have the right to object to PLEA’s processing of your personal data, under certain conditions.

The right to data portability – You have the right to request that PLEA transfer the data that we have collected to another organisation, or directly to you, under certain conditions.

If you make a request, we have one month to respond to you. If you would like to exercise any of these rights, please contact us:

Email: hello@pleacommunity.org.uk

Cookies

Cookies are text files placed on your computer to collect standard Internet log information and visitor behaviour information. When you visit our website, we may collect information from you automatically through cookies or similar technology

For further information, visit allaboutcookies.org.

How do we use cookies?

PLEA uses cookies in a range of ways to improve your experience on our website, including:

  • Understanding how you use our website

What types of cookies do we use?

There are a number of different types of cookies, however, our website uses:

  • Functionality – PLEA uses these cookies so that we recognise you on our website and remember your previously selected preferences. These could include what language you prefer and location you are in. A mix of first-party and third-party cookies are used.

How to manage cookies

You can set your browser not to accept cookies, and the above website tells you how to remove cookies from your browser. However, in a few cases, some of our website features may not function as a result.

Privacy policies of other websites

Our PLEA website contains links to other websites. Our privacy policy applies only to our website, so if you click on a link to another website, please do read their privacy policy.

Changes to our privacy policy

PLEA keeps its privacy policy under regular review and places any updates on this web page. This privacy policy was last updated on 11 May 2020.

How to contact us

If you have any questions about PLEA’s privacy policy, the data we hold on you, or you would like to exercise one of your data protection rights, please do not hesitate to contact us:

Email: hello@pleacommunity.org.uk

How to contact the appropriate authority

Should you wish to report a complaint or if you feel that PLEA has not addressed your concern in a satisfactory manner, you may contact the Information Commissioner’s Office.

 
 

As a non-profit organisation, PLEA will only invest in projects that address accelerating access to prescribed CBMPs. We shall advocate for the patient community whilst remaining impartial and are not incentivised, influenced or motivated by financial gain. Our resources are offered to patients free of charge.